The JDF Washington Report
Vol. II, No. 7, March 19, 1999 Diabetes Funding Letter to Chairman
Porter 244 Signatures!
The Congressional Diabetes Caucus has circulated a letter to all Members of the House
of Representatives (see WR: II, 6) urging their
colleagues to sign a letter in support of increased federal funding for diabetes research.
Based on recommendations by the Diabetes Research Working Group (DRWG), the letter
outlines the need for $827 million for diabetes research for FY2000, up from $449 million
appropriated in FY99. This letter will be delivered to Chairman John Porter (R-IL), who
chairs the House Appropriations Subcommittee on Labor, and Health and Human Services and
Education on Tuesday, March 23.
Diabetes Research Working
Group to Brief Capitol Hill
The Diabetes Research Working Group will participate in a special briefing hosted by
Chairman John Edward Porter (R-IL) and the House Labor/HHS/Education Subcommittee on
Appropriations. Chairman of the JDF Communications S. Robert Levine, M.D., will present
JDFs interpretation of the Congressionally mandated report. The Congressional
Diabetes Caucus and other diabetes organizations will also participate in the briefing on
Tuesday, March 23. See also, DRWG Strategic Research Plan Summary.
Senator Collins Introduces
Medicare Insulin Pump Bill
Senator Susan Collins (R-ME) introduced the Medicare Insulin Pump Coverage Act of
1999 on March 15, 1999. Medicare does not currently cover insulin pumps under any
circumstance. Medicare now covers diabetes testing supplies, insulin and equipment. A
growing number of private insurers are now including full or partial coverage for external
insulin pumps. Senator Collins cited research from the Diabetes Control and Complications
Trial showing significant delay or avoidance of diabetes complications through tight blood
glucose control. Chair of JDF Government Relations Leah Mullins letter of support
and thanks to Senator Collins was published in the Congressional Record.
Congress Recognizes JDF
Vermont Volunteer, Age 9
Philip Burgin-Younga nine-year-old from Burlington, Vermontsent a letter to
Representative Bernard Sanders (I-VT) and Senators Patrick Leahy (D-VT) and James Jeffords
(R-VT). Representative Sanders was so moved by the letter, he submitted it to the Congressional
Record on March 2, 1999. The Members sent Philip notes pledging their support for
finding a cure for diabetes. We congratulate Philip on his successful advocacy at a very
young age!
After describing what Philip must go through daily living with diabetes, he concluded
his letter by writing:
I want a cure for diabetes so that I can do what I want with my life. I want to
be healthy, and I want to help other people by being a scientist who helps to find cures
for diseases. I also want a cure for all of the other people who have diabetes. As hard as
it is for me with diabetes, at least I am lucky because my mom and dad and sister help me
try to take real good care of myself. Some kids arent so lucky and they end up in
the hospital.
Will you please vote for more money for research to try to find a cure for diabetes? I
know that with more money, scientists will be able to find a cure more easily. There are
so many areas that are being research and if they dont have enough money, they
cant do the research. PLEASE HELP!
Sincerely,
Philip Burgin-Young
Help us Find Additional JDFADVOCATES
We would like to substantially expand our list of e-mail advocates to ensure that even
more people read these updates and help us achieve our goal of finding a cure for diabetes
and its complications. To subscribe to the JDF Washington Report via e-mail,
just send a note to join-jdfadvocates@lists.jdfcure.org.
(See also The Top Ten To-Dos for JDF Diabetes
Advocates.)
- Juvenile Diabetes FoundationGovernment Relations
- 1400 I Street, NW, Suite #500
- Washington, DC 20005
- 1-800-JDF-1VOTE
- Fax: 202-371-2760
- e-mail: mthreatt@jdfcure.org
- www.jdfcure.org
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